Lily Update

A little background: The second day of Lily's life we noticed that she would turn VERY bright pink and sometimes almost purple when she got worked up. This was due to a lack of oxygen circulating her body. Her oxygen was only about 80% of what it should be. A local specialist was called in to observe her and today has given us a diagnosis.

Looks like Lily will be in the record books. Lily's condition is called 'transient isolated right-sided myocardial hypertrophy'.

There are only two kids who have been recorded as having this in the past. We have the medical article if anyone is interested...

Basically, Lily's right ventricle was working harder than it should have been, pumping blood from Lily's heart to Angela's uterus - this was due to some kind of constriction in the opposite artery. Because of this overwork, the right ventricle has a mass of muscle material that is not supposed to be there. In the two recorded occurrences of this condition, with the correct treatment, the muscle mass had returned to normal by 8 weeks allowing the correct flow of oxygen around the body.

So...Lily will remain in the hospital here for another couple of days while she is slowly weaned from oxygen. It is highly probable that we will have to take oxygen home with us to continue Lily's recovery. But it's good news overall. A good diagnosis and a fairly simple treatment plan. All being well, we should see Lily returning to normal over the next days and weeks.

Thank you all for your thoughts and prayers - we love you all very much.